tag:blogger.com,1999:blog-2714606993404704529.post5483131864431268171..comments2023-12-31T17:36:00.083-08:00Comments on Having a Hallelujah Good Time: Please pray for wisdom with our son's SclerodermaKathyhttp://www.blogger.com/profile/15723750357398720115noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-2714606993404704529.post-72883728751427960042014-03-16T13:27:01.028-07:002014-03-16T13:27:01.028-07:00My name is Amy Reid. I have Scleroderma En Coup De...My name is Amy Reid. I have Scleroderma En Coup De Sabre and I have now connected with two others with the same condition. Your son would be the third. If you would like to contact me, my email address is reidrolfe@hotmail.com =0)Amy Reidnoreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-70840836512896678212013-12-02T07:23:24.280-08:002013-12-02T07:23:24.280-08:00I was reading about DMSO and it's use as a tre...I was reading about DMSO and it's use as a treatment for scleroderma. It sounds quite promising. I just ordered some myself. Just make sure you get the 99.998% pure stuff as it transports anything mixed with it directly to the cells. It's cheap and unregulated. If you haven't tried it you should really look into it!ebullahttps://www.blogger.com/profile/05803791110466108184noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-6164670161027374692013-10-15T22:24:40.724-07:002013-10-15T22:24:40.724-07:00I recently stumbled upon this post and I hope that...I recently stumbled upon this post and I hope that things are still going well with you and your family. I know it may be a hard thing to have to accept but I know from what I have read that your son is surrounded by love and support. That is what we all need in this life! Thank you for sharing your storyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-69404921203904909902013-01-09T05:05:42.763-08:002013-01-09T05:05:42.763-08:00I am praying for your family during the difficult ...I am praying for your family during the difficult time, praying that doctors and researches can find out more about this condition. Please keep us posted, and know that you have friends on your side listening.Jennifer Leblanchttp://collaborate.stanwood.wednet.edu/groups/mrcolby/wiki/ec28c/noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-45987946502740534032012-04-19T12:15:13.147-07:002012-04-19T12:15:13.147-07:00Kathy, I will pray for Nate and all your family! M...Kathy, I will pray for Nate and all your family! My Mum died of scleroderma, she had systemic diffuse one, doctors said she had 5 years to live when I was 4, she died when I was 24! She was a fighter, she did it for me. You have got to be strong for Nate, and I pray to God that his condition doesnt get worse. Keep faith, there are so many treatments available today compared to 20 years ago. God bless!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-33454975855686545512012-03-03T19:05:57.060-08:002012-03-03T19:05:57.060-08:00Kathy, the doctor in the video on CNN is our docto...Kathy, the doctor in the video on CNN is our doctor too! He is amazing! I did research and truly believe he is the best answer for this disease right now! Here is a link to the story done on Hank while we were in NYC. I left you my number on Facebook. Let's talk! I can help!<br />http://www.foxnews.com/story/0,2933,598207,00.htmlTerrihttps://www.blogger.com/profile/03013764786276300558noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-36149276375241945022011-12-15T19:35:42.143-08:002011-12-15T19:35:42.143-08:00I am 20 years old and was just diagnosed this past...I am 20 years old and was just diagnosed this past summer. All things are in Gods hands. He is in control. This is but the presence of sin in the world, but we can look to the day when our bodies are made whole again as we enter the kingdom to be with the father forever. For now it is just difficult to watch who you are change... and this change has changed my thought of who i am. Yet i have to remind myself daily that i am still the same person. I find my Identity now, just the same as I always have- in Christ alone. And that can never change, and that never me taken from us. <br />I will be praying for yall! especially you Nate! Pray for me as I return home from college this Christmas to see family and old friends with a new face. It is tough and I know you struggle too with this but pray that I will see myself the way the Lord sees me. And I will pray that you see yourself the way the Lord sees you; Handsome and Courageous and kindhearted.Fraziernoreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-65150713778594770822011-05-31T14:24:45.476-07:002011-05-31T14:24:45.476-07:00I am also 14 and have had Scleroderma since i was ...I am also 14 and have had Scleroderma since i was four. i know what your family is going through since mine is going through the same thing. Stay strong and trust in God xoxoBrittanyhttp://brittanyx1115@aim.comnoreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-31642038375567009022011-05-02T17:15:22.752-07:002011-05-02T17:15:22.752-07:00http://www.dailymail.co.uk/health/article-1360820/...http://www.dailymail.co.uk/health/article-1360820/The-little-girl-doctors-told-face-eating-away--theres-cure.html<br /><br />In this article, a girl with the same disease is now being treated for it. Maybe you can find somebody? I do hope your son will be okay, and will keep him in mt prayers (:Melissahttps://www.blogger.com/profile/05466695432026828037noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-40613617122865858132011-02-25T09:19:53.885-08:002011-02-25T09:19:53.885-08:00Check out this CNN article. Maybe the same Doctor ...Check out this CNN article. Maybe the same Doctor can help you and your son?<br /><br />http://www.cnn.com/2011/HEALTH/02/25/surgery.parry.romberg.disorder/index.html?hpt=C2Anonymoushttps://www.blogger.com/profile/01982558918016032506noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-83004158750846345282010-10-26T11:06:47.113-07:002010-10-26T11:06:47.113-07:00Hopping back through… and a new follower too! Pray...Hopping back through… and a new follower too! Praying for your son, your family, and the doctors! It is so hard when it's our child and we can not do anything for them.<br /><br /><a href="http://familyof6on26kyear.blogspot.com/" rel="nofollow">7 on a Shoestring</a>Staci @ 7 on a Shoestringhttps://www.blogger.com/profile/05862286574795749031noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-79895756719669738122010-10-25T06:30:25.454-07:002010-10-25T06:30:25.454-07:00Moms do not need words to be eloquent - their hear...Moms do not need words to be eloquent - their hearts, like your are eloquent enough. You and your son are in my prayers! Praying for Healing!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-72948917802162359062010-10-22T16:23:16.618-07:002010-10-22T16:23:16.618-07:00oh my goodness. I am so sorry. I will praying fo...oh my goodness. I am so sorry. I will praying for you guys that you are able to remain strong and at peace. I know God is there walking with you as you go through this.<br /><br />bless you<br />RheannaRhe Christinehttps://www.blogger.com/profile/18080016059344575635noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-60370601523306516252010-10-20T00:07:41.238-07:002010-10-20T00:07:41.238-07:00Praying for your son and the whole family. HUGSPraying for your son and the whole family. HUGSDawnahttps://www.blogger.com/profile/07866755419332331933noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-77971218724245090262010-10-16T07:39:10.482-07:002010-10-16T07:39:10.482-07:00Praying for Nate and your family.
2 Corinthians 4...Praying for Nate and your family.<br /><br />2 Corinthians 4:7 - God can give us that "power beyond what is normal" to keep us strengthened during times like these.<br /><br />Isaiah 33:24 - We can look forward to a time were no one will say they are sick. (Revelation 21:1-5)Summerhttps://www.blogger.com/profile/03196008425290048709noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-39157918546252642672010-10-15T12:03:06.497-07:002010-10-15T12:03:06.497-07:00I am praying for your family during the difficult ...I am praying for your family during the difficult time, praying that doctors and researches can find out more about this condition. Please keep us posted, and know that you have friends on your side listening.Hollyhttps://www.blogger.com/profile/13876347403157981013noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-82091511424706049732010-10-15T09:17:47.359-07:002010-10-15T09:17:47.359-07:00I'm sorry you have this in your life, I will p...I'm sorry you have this in your life, I will pray for you guys. What a handsome guy he is- those eyes! I can attest to those diet changes affecting the immune system for the better. It's overwhelming and all-consuming to begin that change, but it is very doable and gets easier once you familiarize yourself with the products you CAN buy and eat. Don't think of it as reducing his diet...just eating different stuff! If it were reducing, I would've lost weight by now--lol! Let me know when you need menu ideas!whttps://www.blogger.com/profile/12254948786144515945noreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-77416780037976540562010-10-15T04:16:56.649-07:002010-10-15T04:16:56.649-07:00Sorry you all are going through this. You are so ...Sorry you all are going through this. You are so right to trust God, only He knows the plan. I am praying for you all and espically for Nate.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2714606993404704529.post-74800313061410547462010-10-15T04:16:17.401-07:002010-10-15T04:16:17.401-07:00Praying for you, your son, and your entire family!...Praying for you, your son, and your entire family!!Anonymoushttps://www.blogger.com/profile/15273090648046464044noreply@blogger.com